What I am about to describe, as they occur, are great injustices, with terrible ramifications for, if no one else, me personally. I have had concerns that I had the disease Wilson’s Disease, now, for 14 years approximately. When the disease is known to have only been diagnosed previously, according to literature, in the 8th decade of life ( ) I have still been told about how ill other patients are by both Wilson’s Disease professionals I have seen, Michael Schilsky and Thomas Schiano, how sick the children are he sees in the case of Schilsky, and how low the ceruloplasmin levels are of the patients Schiano sees.

   For me, in the summer of 2005, I first began to suspect my psych problems I experienced were caused by Wilson’s when I began to read about it, and found first of all, that I experienced emotive episodes that seemed irregular, after consuming what are known as ‘high copper foods’. I think the question should then be, considering how much the zinc therapy also helps which blocks intestinal absorption of copper, whether someone with my test results could be best treated with zinc, which would be the indication, given there are no definitive indications (in spite of what doctors have said to me, it’s specific in, if I am not mistaken, basically, all the academic literature, where unlike when seeing and speaking to me, ‘t’s are crossed, and ‘i’s are dotted, and this discrepancy for unknown reasons not understood by me) that I don’t have the disease.

   Answering these questions has also not been a priority for reasons I also do not fathom: ‘How do you know I am not experiencing exactly what I say I am experiencing?’ and ‘Why is it not then suggested that I have Wilson’s Disease?’ Generally, it would be said it’s unlikely, or especially would have, that I have Wilson’s Disease, but why is it so? Is it then translatable to then say it is likely I am delusional? Or to testify in court that my belief is delusional so one can treat me with psychotropics as my parents, Edward and Bernice Richards, who have intervened in my life, with extremely adverse effects, have attempted to do, as they are encouraged by various physicians, as Dr. Morris Goldman testified in court in Chicago, IL? Do any know that I am not experiencing these things? Why does the ‘unlikeliness’ take a precedent allowing me to be psychologically abused over the truth contained in the academic papers? Why is it true that these ideas that it is unlikely, then, also, mean anything at all, ultimately?

     The small group of doctors who have specialized in Wilson’s Disease have made these methods, are they then not responsible because they ultimately also say it works, that those who they find, using them, don’t have Wilson’s Disease do not? Again, do they really know they aren’t, by failing to tell the simple truth, in a professional capacity, what they do not know. At this point, after going off the zinc treatment after having many problems caused in my life by the denial that I could have Wilson’s, based on the ‘logic’ I have described above, I went off the self-administered zinc treatment, and quite literally suffered a mental breakdown, in the past year, while living in Chicago, IL causing myself huge problems, ostensibly, if the problems were primarily caused by physicians with absolutely no evidence based in reality saying I didn’t have the disease, and hardly any one can care, everyone seems to act the same, they don’t care about the injuries done to me by these actions and words, or the abuse it constitutes to say they know I don’t have the disease, as Michael Romanowsky has said my primary care provider from back in 2005, of Windham, NH, or as Phenton Travis Harker has suggested he believes, my newest pcp, here in Portsmouth, NH.

   Now, I have had what is called a ‘free copper’ result of 30.3 ug/dL, where over 10 ug/dL is above normal, and as Michael Schilsky and Eva Roberts write in the aasld “A Practice Guide on Wilson’s Disease”, above 25 ug/dL is considered diagnostic by some practitioners. They, incidentally, then say the ceruloplasmin results are not reliable, so they don’t consider it a diagnostic test, although in ‘Diagnosis and Current Therapy of Wilson’s Disease’ (2004) by Peter Ferenci, there’s no mention of any ‘false positives’ for the free copper test only false negatives. So, let alone when your free copper is above 25, do they know this isn’t affecting people, causing their psych problems, directly, meaning it could be treated with zinc, when it’s just marginally high, on a test do they know, because other tests aren’t high enough, or positive, in the case of the kayser-fleischer-ring exam, when your free copper is just slightly higher than 10 ug/dL.

  Again, I don’t know what ramifications this would have for other people. Of course, I am still a victim of what should be known as a crime if it’s not intentional, as it is, if there’s a worry that other psych patients could demand to be treated for Wilson’s, ostensibly, if I weren’t treated as I have been. Yet, I have no recourse against all these people whose behavior is either unintelligent, or technically speaking, not sane. I don’t want it to seem like I am reaching here but at this point a ceruloplasmin test has also been nearly below the 20 mg/dL level of mine, at 20.8. Now, to protect my health, I am again taking zinc, but it’s not simply paying for it, or that insurance won’t, I don’t have, as Thomas Schiano told me, available to me the 'Galzin' zinc which functions to reduce intestinal discomfort. I don’t have the defense against those trying to treat me, which began as malpractice and remains so, with dangerous health reducing, psychotropics whose side effects are extremely severe.

" Thus, in a normal individual, with say 100 μg/dl serum copper and 30 mg/dl caeruloplasmin, there will be 90 μg bound copper and 10 μg ‘free’ copper.2 Roberts and Schilsky3 give a slightly higher figure for the upper limits of normal as 15 μg/dl and they add that most patients with untreated Wilson disease have 25 μg/dl or above but give no authority for these figures."

" Scheinberg and Sternlieb2 drew attention to this method of estimating ‘free’ serum copper and noted that it was this, ‘diffusible fraction of serum copper that is the ultimate cause of the disease’; and they established the upper limit of normal as 10mg/dl."

'Serum ‘free’ copper in Wilson disease
J.M. WALSHE'

I also found, from the same site/paper/author, J.M. Walshe, this to be of note " However, as stated earlier, ‘free’ copper is really a misnomer as much of the non-caeruloplasmin copper is complexed to albumin and is therefore not available for filtration through a collodion membrane nor is it available for excretion at the glomerulus unless there is significant proteinuria." I don't know exactly what it means, but it would seem to have something to do with a stage of the disease I might be at, where this has yet to occur, although I would be, if I were to continue refraining from taking zinc, theoretically, on the cusp of worsening in this condition eventually.

I also wanted to add that some people have not been diagnosed with Wilson's until they were 70 years of age, I don't know where I heard this, but I know it was from a reliable source, unfortunately I can't keep track of all these, so my being, especially considering how I have halted the progression of the disease, all these years, 36 with the minor amount of scarring to my liver, I just want to be respected, and I want sense to be made by physicians. I don't want to never have the right thing done, and suffer from lack of support and funds, at this point you probably know I believe the psychiatrists are guilty of malpractice, and I don't think it's that complex. It's a weird coincidence that I thought I had this disease, made my points about not caring about the past, what has been done, being repeated, but what makes sense in the future being done, by those who are subject necessarily only to contingent standards, rather than falsely concluding they can fail to respect my intelligence for any number of rationalizations of doing so, and then after not treating myself with zinc, suffering consequences of failing to do so that few, if any, may ever understand, that this described by the early practitioners studying the disease described as 'the ultimate cause of the disease' is elevated, not simply to above normal but above what is described as diagnostic criteria of the disease. So, really, what is correct, plainly, seems to have little to do with my having caught the disease, intelligently, while I am treated like I am raving, on the other hand, by ostensibly responsible persons, early, but why anything has proven I was incorrect, not that it bothered doctors, or that they disagreed, or had different ideas, to feel I was suffering badly enough that zinc should be used, definitely, and therefore, that the disease should be diagnosed also, as those who claimed I didn't have it, were not using the correct definition and understanding of the disease to figure what was correct, who needed some form of treatment for it, and who would not benefit from it.