This is to illustrate mainly the trend of lowering caeruloplasmin; seemingly, if I didn't continue, once again, as I have resumed the zinc treatment, my caeruloplasmin levels would continue to drop to below the 20mg/dL level

I know time is of the essence. I just hope it (time) isn’t so crucial that, as I have seen with many people with degrees, holding down jobs, and taking in an income on top of it, they wouldn’t care to investigate where they may, chances that they are failing to meet another type of standard of intelligence and fairness, such as due to any number of causes, for example a stigma’s incorporation into thought and reification as a belief that a system is working, when simple logic or common sense might tell us it’s not appropriate. It’s not because they get away with treating it as unlikely that they are responsible for doing incredible harm to someone, in part, incredibly, ultimately, unnecessarily, and thusly as no concern of theirs, as no one makes it a concern of theirs, as my complaints fall on deaf ears, if I am not threatened with more impending health crises, for maintaining that I have a grain of sanity, and say, know when my liver hurts me, after a drink, after a large serving of guacamole, after a tempeh and avocado sandwich (both meals happen to be high in copper, a concern I would relate to the Wilson’s Disease discussion below), after a single alcoholic beverage, namely those coordinating with what are put there by law for a reason I presume, the side-effects list, and no it’s not just that a person goes from being quite flexible to unable to reach while standing their foot to place on their socks. These affects, by the way, are ‘more than justified’ for the ‘advantages’ of what is being done, at the behest of, perhaps, too many persons, their being too important, or perhaps trustworthy, with whom to argue. As I omitted below, in my first note, nothing indicates I do not have Wilson’s Disease. Although, likely not hurting me and doing a crime with a definite victim if no perpetrators, ostensibly, they say it’s unlikely I have this rare disease, which wise people would know might become less rare if a free copper level above 25 was thought to be diagnostic, for one think, but it’s rare, so let’s keep it that way, so they say it’s rare, so they think I don’t have it, so they say I don’t have it even, like saying they think I don’t, isn’t injurious enough, given the situation, of reasonable people who acknowledged I could be a reasonable person at times, and maybe deserved to improve in health, welfare, intelligence, even fiduciary means, for being correct, not incorrect, what you are guided to do, ostensibly, by your caring parents against people who threaten you to say one thing, rather than another, (in its most extreme form, really), when others, if they didn’t have to bail out who they saw as good, demonstrating what they all are like, had to ensure a person was treated, it’s ‘the system’ working ostensibly, ostensibly, designed for a reason, and ostensibly, justly so, not simply effectively so. I was told by Morris Goldman circa 2010, that ‘when you hear hoofbeats think horses, not zebras’ to describe where he knows what he is doing, and that his testimony, his ‘opinion’ well, if it’s thought to be serious where inaccurate it would be that, not, implicitly things he knows to be the truth he’s speaking, and it’s not appropriate much like the Wilson’s rubrics never were appropriate to apply to my case, which is not an E.R. situation. Merely, people act with a herd mentality, and find it to be ‘all the doctors’ being correct, ‘by course’ when their ‘expertise’ finds the same conclusion, and, besides, who am I to stop them, if I am unwell, and trying to recover, as I was when I was taking zinc treatment, as stipulated for Wilson’s Disease patients, from around 2010 to around 2017, when I decided to stop, until learning my free copper was well above normal, and above what some doctors consider a level diagnostic for WD which I first believed I had in 2005, after graduating from Boston College with a 3.27 GPA and a bachelor’s degree in English. This, by the way, precipitated a disastrous eviction, where, after convincing myself it was wrong to have to sell a beloved bicycle and get my credit up I had bought through Paypal credit, I lost what I still believe to be some easily five-thousand dollars worth of stones, some of which can be seen on my Facebook profile, and which all were documented, along with arguments for a layperson to engage with, as to why they were meteorites was deleted with the downfall, recently, of the Google+ social networking site, which were my prized possessions, in plastic bags, in a box where they could not be touched, along with liquid foodstuffs, protected by a camera on a tripod pointing to the rocks balancing on the top of them (some on incredibly fine edges, which I think are perpendicular at those points the line intersecting the center of gravity from spinning through the atmosphere and being highly ‘ablated’ thereby). That’s before the eviction led to them being thrown out most likely, reportedly kept by the landlords, New Era realty of Logan Square, or by their men working for them at their orders, (as many rocks were indeed sent to a storage unit, and I had hoarded, foolishly perhaps failing to return the seemingly lesser rocks to the parklands I found most upon, with a dream of making money from medical malpractice cases somehow, of the situation being remedied by authorities who happened upon my account, and my using them in some sort of fountain in a house I would later acquire)., or perhaps taken by people reading my blogs whose interest was aroused in what might be worth more than gems (please see my f profile, and MPOD 150305 from Tucson Meteorites and you can ask yourself if that red/maroon hue is from the oxidation within the porous fusion crust from time spent in an aqueous environment, and if that’s a meteorite, not a delusion, as these friends of my parents, all of them they’re making in this, and passing money to, from insurance and the state and otherwise, as I waste the time, see below, of Michael Schilsky, and Thomas Schiano, must agree with them, that perhaps more drugs are needed for this, ‘no harm no foul’ and it takes care of the politically incorrect, yet there without being seen, ‘snake-oil’ too, I guess) {Please if anyone finds my attitude off-putting, and finds themselves being emotionally involved reading this in that manner, please pass this on, and don’t hastily exercise the will to place it in the circular file, I beg you spare me, I can’t make this much simpler, or be any nicer to others, who aren’t common by the way, they’re exceptional, so they should be able to hear these things, and that’s simply the way things are} I lived all those years in Chicago, mildly undernourished, hospitalized once after visiting Northwestern’s E.R. after going off zinc, after due to being bothered by the poor air quality in Logan Square, taking more than the advised zinc briefly, and becoming anemic, which I stopped and had planned to not repeat but they, after keeping me there, for I think almost two months, with the acquiescence of a judge Ellis and a judge Karkula, sent me home anyway, and with a jab of painful deck timed-release risperidol, that I think did a lot of harm to my physiology, for I was in an awful mood after that, the worst imaginable, within a few days. That is something, please forgive me if this characterization is a bit of rambling on here, or seemingly trifling, Ed Richards seems to enjoy, and I had, anemic, fainted in front of the guardian appraisal troupe he had sent, since I had fled them to escape the NH guardian he had appointed with the help of Peter Hurd, John Hinck and Robert Vidavers M.D.s of New Hampshire Hospital, Eric Mart his acquaintance from trial work, a psychologist that works out of Manchester, and the psychiatrist Eric works with John Jacobs M.D. of Hooksett, and ruin whatever I am doing out there, for it’s my fault, and I am, as he is well-sure, mentally unwell, and indeed quite insane, but here, I am, fwiw, ‘honey’ after dragging the pneumatic pump up from the shed so he can fix the tires of the neighbor friends of his, a 75 year old former judge from Nashua where Ed practices still, Roger Gauthier which had to be deflated to remove the new (smashed) r/v from the home two days ago now. I no longer think of him as ‘a devil’ who it would be wise for me to ‘make a deal with’ as I thought he was on Christmas of 2008, after what the NAAB (National Architecture Accreditation Board), when I finally wrote them, with all the support and well thought-out advice I receive from so many people, would fail to respond to, as my complaints about failure to adhere to their ‘studio culture’ parameters, and my responses led to the near expulsion from SAIC. For, I had made a clay ‘site model’ of a site with some topography, unlike the rest of the class, I cut mine into small rectangular squares, and used those to create a pixelated sort of map, but the river was at the level of the board it was built on, I needed to add another level, according to Linda Keane and Ellen Grimes, who also made some fantastic statements in class, before a triumvirate of Hennie Reynders, Anders Nereim, and Ben Nicholson failed to side with me (Linda: “River city will have to work around us” Ellen: “I don’t like people who have ‘I am a rebel’ written on their foreheads” the inquiries into whether these comments were made were of course substantial; I had added an early trial massing volume of a building which was like a less rectilinear version of the Bertrand Goldberg building our site chosen for us by the above was sited next to, and I have a scar, incidentally, on my forehead, from hyperactivity as a fairly young child). Also, I failed to color in the collection of ‘objects’ which would be trash from homeless people, which was supposed to enlighten us about programming, namely what is done currently on the site, and presumably in the future as well. Well, I am sure these are like the wise people reading this, getting this far, giving it the time, like it mattered when I put things on Google and had something like iirc 70 views per day, at times thirty, thousands before they, before dismantling the site, which had to be loaded linearly, I’ll add, and couldn’t be searched so people could read it all, took down the labels indicating number of views a site has received, whatever prompted these various things), not ‘mentally ill’ people like, according to Ed Richards, Trump who he loves to hate, and the wife of a client for whom is officiating a divorce.

What I am about to describe, as they occur, are great injustices, with terrible ramifications for, if no one else, me personally. I have had concerns that I had the disease Wilson’s Disease, now, for 14 years approximately. When the disease is known to have only been diagnosed previously, according to literature, in the 8th decade of life ( ) I have still been told about how ill other patients are by both Wilson’s Disease professionals I have seen, Michael Schilsky and Thomas Schiano, how sick the children are he sees in the case of Schilsky, and how low the ceruloplasmin levels are of the patients Schiano sees.

   For me, in the summer of 2005, I first began to suspect my psych problems I experienced were caused by Wilson’s when I began to read about it, and found first of all, that I experienced emotive episodes that seemed irregular, after consuming what are known as ‘high copper foods’. I think the question should then be, considering how much the zinc therapy also helps which blocks intestinal absorption of copper, whether someone with my test results could be best treated with zinc, which would be the indication, given there are no definitive indications (in spite of what doctors have said to me, it’s specific in, if I am not mistaken, basically, all the academic literature, where unlike when seeing and speaking to me, ‘t’s are crossed, and ‘i’s are dotted, and this discrepancy for unknown reasons not understood by me) that I don’t have the disease.

   Answering these questions has also not been a priority for reasons I also do not fathom: ‘How do you know I am not experiencing exactly what I say I am experiencing?’ and ‘Why is it not then suggested that I have Wilson’s Disease?’ Generally, it would be said it’s unlikely, or especially would have, that I have Wilson’s Disease, but why is it so? Is it then translatable to then say it is likely I am delusional? Or to testify in court that my belief is delusional so one can treat me with psychotropics as my parents, Edward and Bernice Richards, who have intervened in my life, with extremely adverse effects, have attempted to do, as they are encouraged by various physicians, as Dr. Morris Goldman testified in court in Chicago, IL? Do any know that I am not experiencing these things? Why does the ‘unlikeliness’ take a precedent allowing me to be psychologically abused over the truth contained in the academic papers? Why is it true that these ideas that it is unlikely, then, also, mean anything at all, ultimately?

     The small group of doctors who have specialized in Wilson’s Disease have made these methods, are they then not responsible because they ultimately also say it works, that those who they find, using them, don’t have Wilson’s Disease do not? Again, do they really know they aren’t, by failing to tell the simple truth, in a professional capacity, what they do not know. At this point, after going off the zinc treatment after having many problems caused in my life by the denial that I could have Wilson’s, based on the ‘logic’ I have described above, I went off the self-administered zinc treatment, and quite literally suffered a mental breakdown, in the past year, while living in Chicago, IL causing myself huge problems, ostensibly, if the problems were primarily caused by physicians with absolutely no evidence based in reality saying I didn’t have the disease, and hardly any one can care, everyone seems to act the same, they don’t care about the injuries done to me by these actions and words, or the abuse it constitutes to say they know I don’t have the disease, as Michael Romanowsky has said my primary care provider from back in 2005, of Windham, NH, or as Phenton Travis Harker has suggested he believes, my newest pcp, here in Portsmouth, NH.

   Now, I have had what is called a ‘free copper’ result of 30.3 ug/dL, where over 10 ug/dL is above normal, and as Michael Schilsky and Eva Roberts write in the aasld “A Practice Guide on Wilson’s Disease”, above 25 ug/dL is considered diagnostic by some practitioners. They, incidentally, then say the ceruloplasmin results are not reliable, so they don’t consider it a diagnostic test, although in ‘Diagnosis and Current Therapy of Wilson’s Disease’ (2004) by Peter Ferenci, there’s no mention of any ‘false positives’ for the free copper test only false negatives. So, let alone when your free copper is above 25, do they know this isn’t affecting people, causing their psych problems, directly, meaning it could be treated with zinc, when it’s just marginally high, on a test do they know, because other tests aren’t high enough, or positive, in the case of the kayser-fleischer-ring exam, when your free copper is just slightly higher than 10 ug/dL.

  Again, I don’t know what ramifications this would have for other people. Of course, I am still a victim of what should be known as a crime if it’s not intentional, as it is, if there’s a worry that other psych patients could demand to be treated for Wilson’s, ostensibly, if I weren’t treated as I have been. Yet, I have no recourse against all these people whose behavior is either unintelligent, or technically speaking, not sane. I don’t want it to seem like I am reaching here but at this point a ceruloplasmin test has also been nearly below the 20 mg/dL level of mine, at 20.8. Now, to protect my health, I am again taking zinc, but it’s not simply paying for it, or that insurance won’t, I don’t have, as Thomas Schiano told me, available to me the 'Galzin' zinc which functions to reduce intestinal discomfort. I don’t have the defense against those trying to treat me, which began as malpractice and remains so, with dangerous health reducing, psychotropics whose side effects are extremely severe.

" Thus, in a normal individual, with say 100 μg/dl serum copper and 30 mg/dl caeruloplasmin, there will be 90 μg bound copper and 10 μg ‘free’ copper.2 Roberts and Schilsky3 give a slightly higher figure for the upper limits of normal as 15 μg/dl and they add that most patients with untreated Wilson disease have 25 μg/dl or above but give no authority for these figures."

" Scheinberg and Sternlieb2 drew attention to this method of estimating ‘free’ serum copper and noted that it was this, ‘diffusible fraction of serum copper that is the ultimate cause of the disease’; and they established the upper limit of normal as 10mg/dl."

'Serum ‘free’ copper in Wilson disease
J.M. WALSHE'

I also found, from the same site/paper/author, J.M. Walshe, this to be of note " However, as stated earlier, ‘free’ copper is really a misnomer as much of the non-caeruloplasmin copper is complexed to albumin and is therefore not available for filtration through a collodion membrane nor is it available for excretion at the glomerulus unless there is significant proteinuria." I don't know exactly what it means, but it would seem to have something to do with a stage of the disease I might be at, where this has yet to occur, although I would be, if I were to continue refraining from taking zinc, theoretically, on the cusp of worsening in this condition eventually.

I also wanted to add that some people have not been diagnosed with Wilson's until they were 70 years of age, I don't know where I heard this, but I know it was from a reliable source, unfortunately I can't keep track of all these, so my being, especially considering how I have halted the progression of the disease, all these years, 36 with the minor amount of scarring to my liver, I just want to be respected, and I want sense to be made by physicians. I don't want to never have the right thing done, and suffer from lack of support and funds, at this point you probably know I believe the psychiatrists are guilty of malpractice, and I don't think it's that complex. It's a weird coincidence that I thought I had this disease, made my points about not caring about the past, what has been done, being repeated, but what makes sense in the future being done, by those who are subject necessarily only to contingent standards, rather than falsely concluding they can fail to respect my intelligence for any number of rationalizations of doing so, and then after not treating myself with zinc, suffering consequences of failing to do so that few, if any, may ever understand, that this described by the early practitioners studying the disease described as 'the ultimate cause of the disease' is elevated, not simply to above normal but above what is described as diagnostic criteria of the disease. So, really, what is correct, plainly, seems to have little to do with my having caught the disease, intelligently, while I am treated like I am raving, on the other hand, by ostensibly responsible persons, early, but why anything has proven I was incorrect, not that it bothered doctors, or that they disagreed, or had different ideas, to feel I was suffering badly enough that zinc should be used, definitely, and therefore, that the disease should be diagnosed also, as those who claimed I didn't have it, were not using the correct definition and understanding of the disease to figure what was correct, who needed some form of treatment for it, and who would not benefit from it.

I have for many years had my reasons, associated with my associating my feelings and doings and experience in general with copper consumption, as noted by type of food stuffs consumed, and/or absence or presence of zinc supplementation in my diet, which blocks the copper from being absorbed in the gut. It has been, my arguing I have this problem, a key argument I believe in diagnosing me with an unrelated psychosis, which I believe constitutes criminal activity, subjecting me to painful and disruptive treatments and insulting hospitalizations, at the hands of these physicians' testimony, judges' inputs, and the omnipresent supportiveness of the quest to medicate me of my parents, Ed and Bernice Richards, which have all traumatized me, and driven me towards madness, complicating my life. That this notion of mine has been patently dismissed has created a key element in this ongoing tragedy.
   My admitting I have some sort of depressive or psychiatric problems has been selectively heeded, as my witness, and false tenets have established that this is not due to Wilson's Disease. Basically, I want a standard to be met, that had not been met whatsoever, of diligence. Rather than presuming what is the current protocol is correct, and more sane, of distinguishing specifically that what I say can't be correct would seem a rather simple undertaking. On the other hand, when tests for Wilson's Disease don't prove that I have the disease according to current standards, I am called delusional, as if it has been proven definitively, while, it is clear I may still have the disease, according to the literature itself, taken in a whole, just that it indicates I can't be diagnosed. So, does it mean that I can not have the disease actively being something that would benefit from treatment, or even solely being recognized as a problem I encounter specifically, not just offering me sympathy because I am someone who is stricken (by schizophrenia, as it were)?
     My point has been I don't know that these criteria were selected correctly, there has been historically an expanding populace recognized to harbor the genetic mutations that cause Wilson's Disease and the associated abnormalities with copper metabolism. There are indications I suffer from this, and the isolation of aspects of my experience along with ignoring that these tests do not prove I can not be suffering from symptoms related to errors in copper metabolism, simply because these tests haven't proven that I do have Wilson's Disease, according to currently accepted rubrics. I have been someone who had higher test scores on SATS (1420 cumulative of two attempts in 2000) and GREs (1380 cumulative on two attempts in 2005), than most people I have known and, today, my life is in shambles. I believe generally I have done better when taking over the counter zinc supplements in the therapeutic dosages, but with this offsetting the test scores, theoretically, that would potentially prove I have this disease definitively before the medical establishment. Now, I have recently had a score that was cast doubt upon in the free copper test of 30.3 ug/DL and have an appointment on April 30th to speak to Dr. Thomas Schiano, who, on the last occasion I saw him, conceded, as my parents fail to realize again and again, I'll add, that the genetic tests don't absolutely rule out my having the disease.

Views

All time views on this blog are below a mere 1,000. So, on Google+, in comparison, well, so far as a I recall, before they removed the statistics for total views, I had something like hmmm was it 10k views? That's all been deleted now

Lattice

It's like I didn't even publish that lattice right before the Eli Broad museum competition for L.A. began, and before it was one with something that seems obviously inspired, if not filched, from my 'lattice', to create 'the veil', making SAIC AIADO look better, for we also don't know if it was said, or if it matters if it was "River city will have to work around us" and "I don't like people who have 'I am a rebel' written across their foreheads" (fwiw I have scars on my forehead from when I was young and overly exuberant)